Friday, 22 March 2019

Late Diagnosis

If my life had a tag line. 🙄

Growing up in Ireland I got held back Two grades because you know, I'll catch up to the other children by going slower (it's a real Irish solution) and makes me feel like I live in Cyprus Creek working for the Globex corporation.

Geeky relevant reference aside, I'm left wondering if id be diagnosed earlier, would life have thrown insurmountable barriers in my way? By being told "you're not able" would I have a lost a lot of determination and drive that's got me to where I am today?

Speaking of drive, my licence is up for renewal. I'm shit scared I'll lose my independence if they take it off me. No offence to taxi drivers but I can't take the anxiety of waiting for a car that might be late. I hate being late.

Well, guess I'll find out when I apply......

Tuesday, 19 March 2019

Let's play catch up

Last post was two years ago, in April 2017.

Time flies when you're experiencing change I guess. A lot has happened and the blog fell by the way side (even with it's own regularly viewed FaceBook page) and  it just felt like I was in control of my disabilities and a blog with no insightful content isn't exciting, it's dull and samey.

Funny what depression and anxiety can do. See! New diagnosis to add to the blog! Disability never changes, but apparently it does and I should really blog about it, if not for anyone else's benefit then it least my own ("feeling fine" on a typewriter kind of thing).

A blog I read years ago had an entire thread about it being therapy, to be able to talk into the void. Well guess where I'm going with this?

Oh, and a teaser intro post to re introduce my blog while I write a catch up "previously on the Aspy Journey"?

You're welcome.

Only joking.

Two year update:

•I've moved jobs, much happier with great support.
•I've started seeing a therapist who's diagnosed me with anxiety, depression and CPTSD (yes, these will be future topics)
•I'm in a new relationship and a new town.

All caught up? Good. See you next week.

Monday, 3 April 2017

No post this week

So, unless you follow me on Facebook or Twitter (hint, hint, click click), you'll be surprised there's no full post this week.

Why? 

Because I'm a fat lazy sod who decided he liked the blog the way it were and don't need no fancy new regimen to boost credibility or help people......

Obviously.

It's more that the new job has loaded a whole load of training and education into my time table and I am determined and obligated to complete that training in a timely manner and it will give me a good basis for productive work. 

I take longer to complete reading and comprehension tasks, like reading policies or doing self directed online learning. Although half the time I think it is simple bone idleness on my part, I do take more frequent breaks and I find more diversion tactics that are synonymous with dyslexia (while it's being mentioned, why is dyslexia so hard to spell?). I'm the worlds greatest avoider of paperwork and book learning. 
It's a common tactic for dyslexics, to find something that either delays having to do a task until it's too late or something that replaces that task. I did it in school like nobodies business, telling convoluted stories or chattering mindlessly to delay written and reading work. 
Work have given me two weeks to do all the work, so I'm in very good hands.

To add to this, I have not discussed the blog with management or given them details and while it's not a work blog, work as you know features heavily, because it's the activity I do the most. There's nothing saying I have to tell work, but to misquote something I read recently: dance like no one is watching but blog like it's going to be read out in a court. For this reason alone, I want management on board, at least tangentially, before I write about the (amazing) support.

Moving on:

The 2nd of April is autism awareness day, so let's talk about that.....

It's old, but lighting up blue is seen as supportive for people with Autism, however Autism Speaks has been attacked as oppressive. I'm including links because I have not had first hand  experience of Autism speaks, mainly because they are American.


In the UK there's a number of charities, and instead of listing them all here, I'm going to add them in as widgets to the site, that way they are easy access.

To any of my international audience, Google is your friend.

Anyway, happy Autism week!


Saturday, 25 March 2017

Looking to the future.

I took last week off for holidays, so logically it follows i have an interesting and insightful post for today.

Yeah, funny that.

I'm full of weird emotions about the coming week. I start at 08:30, so it'll be an early start. I'm excited, I'm nervous, it's been a two week break due to this and that.

I'm sure things will take off, I'm sure there'll be more to talk about.

I'll decompress after the first week, and then we'll see shall we?

Here's to the future.

What's that? It's Mother's Day?

Oh, um.....hi Ma!

While dads always been great, I'm under the impression that it was my mother who was the driving force behind my initial dyslexia testing in London, although the school may also have been competent in sending me for testing.

My parents are that traditional team, backing up teachers and caring about my development and education. I'm fairly sure that without their drive, support and arrangement of extra classes, I wouldn't be doing as well as I am, and starting a great new job tomorrow. There tied that up nicely.

Right, it's lovely outside and I have stuff to do......

Tuesday, 7 March 2017

Reflection.

Right, I can't sleep, so am listening to music and blogging. It might be a little early in the week to be starting this, but by the time it goes up, I'lol have worked my last shift in my current job. That is why this will take a tonal shift halfway through as I sum up feelings (yes, I have them, thanks, I make them up and tell girls I feel them, but I have them) closer to finish.

I don't talk about London, and I won't either but needles to say embarrassing mess comes to mind. One person has read the dismissal report, and I've chatted to some work colleagues about it, select work colleagues who I see out side of work as "friends". Needless to say, it's six years ago now and can be safely skipped with the caveat that it was pre-diagnosis. 

But, as I step forward to a new job, a right future, with managerial blessing and shoving (I think my bosses boss was going to drive me to the interview venue and drop me off until I got interviewed) I need to reflect on the last five and a half years (knobs to London).

First off, my best mate happened to be in nottingham and happened to have a sofa I could sleep on for six weeks. Tell you what, living out of a suitcase while bunking on a sofa with NO MONEY (I used the last amount in my account to drive to Notts, boy cars are featuring heavily lately) gives you some perspective. It took four weeks to find a job, and in hindsight I should have just started working in Tesco or whatever and sucking it up until something I wanted came up. 20/20 and all that bull. 

On the forth of July I got a job I wanted, well mostly, it wasn't in my perfect field but it was related. I busted my yomp there while my GP referred me to Hybury Hospital for intellectual disability assessment. This was where I got formal Aspergers diagnosis and the first "problem" became apparent. I'm too high functioning. "Oh woe is me, I'm too fucking good!" It means I slip through too many cracks, I come off as "normal" (you know my opinion on the idea of normal and if you don't find me someone normal and I'll find you a liar), so when I make a social faux pas People out of the loop fail to understand. It's why I'm open and honest, I'm disabled. I have aspergers, I have CP. This is who I am. I'll play ball, I'll learn to interact but I just need the understanding for when I'm looking murderous because stuffs going wrong. Or I need to work shorter hours because while I love running around, when my legs have melded into a lump of pain and agony, I'm useless and in need to rest. It's why I'm building my career towards a more sedate job, with a desk and a cup of tea.

At this time we'd moved into a small duplex, so i got my own two by four room with a curtain cabled tied to the rail so I lived in an orange twilight. Pre treatment and a bit lost, in a job that was going to destroy me for the next year or so, I began smoking drugs (weed, because I'm such a teenage rebel) and drinking a little too much, you know, beer to wake up with, or I've just come home so an afternoon beer to celebrate. I don't consider myself to have been addicted to either but given that after we moved again  and I couldn't smoke in the house (because I'm not up for freezing my nads off for a smoke) codiene became my drug of choice, or more to the point, cococdamol, so o and a go at my liver with paracetamol. I eventually broke down to my support nurse and she told me cold turkey was the only option and a trip to the GP for blood to check I hadn't ruined my liver (I hadn't so it continues to process the crap I put into it). She counselled me through a very dark and difficult part of my life. Look, I know anonymity on the internet is a lie, but if I'm not frank about this now, four or five years later, when can I be open about what I did to cope. I know drink socially and don't do drugs, but it was hardly a hard core addiction. 

My line of sanity at this time was working on the Trent on a pleasure boat. Volunteering made me free and taught me new skills. This time was full of ups and downs, new diagnosis can make the world seem washed out and empty. Hopes and dreams can be scattered and while the books (the ones I never finished, don't spoil em for me) talk about a feeling of grief and loss, I never really felt that way, just that certain Doors where closed to me now. At the same time I began to strategise a plan to get back into the vine of work I wanted to be in. As it turned out, when that door opened, it was by complete accident and I stumbled ass backwards into it. 

I moved jobs to get away from less than desirable management, and you can't say that didn't teach me a valuable lesson: namely management are more important than salary or work load. Fortunately both of my following jobs have had fantastic management. 

It was aLazy day in my job when I got a text about the job I'm now leaving. Spoke to the agency, and the guy was really good, giving me solid advice on how to broach disabilities in interview (the guy even rang back six weeks or so after I got the job to see how I was doing and a year again after that, now that's dedication). The advice was I straight up told them and they couldn't have cared less, touching on London and why that went to hell ( my true response was WE didn't know, not that THEY, management didn't know). In fairness, my new manager (who hired me while they where in the process where leaving, this lead to years of teasing my new manager that I was the last practical joke played on the workplace), got me a great mentor who backed me and when I got promoted was the sole reason for my colleagues thinking I'd "bloomed".

About six months in, my manager (who hadn't hired me, the poor sod, he was stuck with me) and an experienced bod realised I didn't actually know how to communicate to my colleagues in a professional open manner. Cue intense coaching and training. Recently when I asked for a character reference he included this as a sign of my development, although my favourite bit of that was the description that as a junior manager I was unafraid to "shield colleagues and subordinates from managerial wrath". I believe this comes from the occasional time when I told him he could eat me alive but the team would not suffer for an easily correctable mistake.

But I'm getting ahead of myself a little, because that really brings me up to speed. Just after I got the job, and I can't remember if it was before I started or just after, I contemplated suicide. I genuinely thought about it. I had had a rough road to where I stood. I wondered if this was the best I would be, if there was merit to the idea that after all I had walked, is was success  and to prevent a repeat of London I should just end it, and go out on a high. I had already thought about suicide in my first job in Notts. I only realised during a work life course where the lecturers said that if we'd thought about how to commit it, and come up with a plan then we should seek help. Yep, I had, take myself into the secure chemical room and simply lock myself in with a concoction of unpleasant mixtures to imbibe and hopefully be unreachable before I died. I decided to seek help. My GP recommended religion. Skipped out on that. I don't remember how I got by, but it was probably a lot of sex and drinking.

The Black Dog is something I've been told sits softly behind me, but I never feel it deeply on me. I've thrown away boxes of antidepressants and just got on with it in dark times. And we haven't even hit the tonal shift yet because it s still Monday.


So it's Friday and it's getting to that stage. I'm saying goodbye to staff I won't see over the weekend. I'll be leaving uniforms, badge and swipe behind Sunday night. Then it's time to see if I can step from one job to another. Time will tell.

Monday, 6 March 2017

Driving.

For once I have something relevant and interesting to post about. Would you look at that.

So, new job is two bus rides and a walk from where I currently live and with the civilised start time of 07:15 (meaning I need to be there for 06:30 so I can stumble into a uniform and footwear) getting there without a car is a complete non starter.

I've driven in the past. In fact, I've eight years of driving three different cars without any incident. For the sharp eyed among you, you'll notice that I've had a driving license longer than I have had diagnosis of aspergers or cerebral palsy. 

Unsurpringly the DVLA includes CP as a reportable disability that carries a £1000 fine if caught. When I went insurance shopping, providing that the DVLA clear me, it won't change my premium. The process seems really straight forward too. Fill in some forms, wait six weeks, have an assessment, be cleared to drive. And you can usually keep driving. 

Step one: fill in form 
Step two: wait


What's really got me worried is I just put a deposit in a Corsa. A really nice Corsa. It's yellow.

Look away now if you don't want spoilers for how this ended.....

I bought a merc instead. It's bigger. And smooth like good coffee.

You know I have Facebook *looks seductively at screen*
and Twitter.........

its a total snooze fest but still......

Sorry it's late, my dog ate my laptop, or something.....

Sunday, 26 February 2017

Ongoing support

So, like always, I'm typing this at 23:46 (Greenwich mean time, HELLO AMERICA!), and am clearly not smart enough to come up with a deep thoughtful post about the philosophical insights into having a brain that's been wired like a blind electrician with Parkinson's fuse box.

This might be a two part post, I don't know, but I'm hoping to stretch it out like pair of worn tight wights, mainly because I'm projecting a bit into the future (next month to be exact).

If you have been paying attention, and I'll forgive you if you haven't, what with this blogs complete reliability and regular posting, I have recently moved jobs. OK, not entirely, because I'm working my notice, but anyway there's a new job on the horizon. This has been met with mixed reactions from: "But the current job is great, how can you give up such a great thing!" to "Yes, new opportunities are worth moving for." Both of these are understandable for people who know how hard it can be for the disabled to hold a job (trust me, disability is NO OBSTACLE to employment, or even running ones own business), but also know that we need to grow and develop to find our true potential (and become masters of the universe or something, I never finished the Aspergers for beginners book).

Back after London (and I'm totally calling my tell all book that, after my Patreon takes off, hint hint), I had plenty of support to get into work. My own Aspie Nurse came into my then job and gave them some helpful pointers (or gave me a helpful pointer: run and don't look back), two Occupational therapists sat me down and gave me some advice (short shifts and good management) and always said they where contactable if required. Fortunately, my current job was hugely supportive and no further external support was required. I put huge store in understanding management and actually busting your own backside at being good and meeting people halfway and not talking for hours about toy soldiers.

Anyway, the new job had occupational health ring me (after I filled in another form, and tacked on another sheet cos those boxes are always too small) and they want to see me before I start so we can slide in support if required. This hugely endears me to both the job and the management because this shows they care and are willing to work with me. It also means that if they decide I need support, I can contact external support and swing "reasonable adjustments" into place.

And this is why it's a two part post, I have yet to meet the Occupational Health team. So will update.

yes, I know I've changed the Aspie spelling, frankly I don't care.

For sarcastic Tweets and articles check out Facebook and Twitter. I will figure out how to put these in a side bar soon enough.....